Our listed vendors remain mostly independent distributors of excellent very affordable mobility equipment consisting of mobility scooters, motorized wheel chairs, rise and recliner chairs, adjustable beds, bathing, stair lifts and everyday living aids. We can assist with all your mobility needs. For help with Mobility Scooters Colne needs consider exploring the local businesses listed.


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Ouch! disability talk show 96: Sledge hockey, stick men and welfare
GB sledge hockey players preparing to hit the puck

Never heard of Sledge Hockey? Find out more about the Winter Paralympic sport on the show

This month: We discuss how benefit cuts could affect the economy, how campaigning on social media can be unhealthy as well as positive and how to communicate by message cards if you fall over or don't want to talk.

Also, what is Sledge Hockey?? Our basic guide to the Winter Paralympics now one year away - featuring Tony Garrett, sledge hockey goalie Rob Gaze and visually impaired skier Kelly Gallagher.

Liz Carr and Rob Crossan present.

How do I listen? Stream it on the web, download episodes or subscribe as a podcast with iTunes and other services. Details below.

RELATED LINKS

You heard the show, now find out more about the people and subjects featured.

Hannah Ensor's blog - On the show, Hannah the stickman cartoonist tells Liz and Rob about the cards she has made which she shows the public if she has lost her voice, fallen over, or other disability mishap. They're designed to communicate friendly reassurance in those who might otherwise panic or do the wrong thing.

Pseudo-Living - a blog by Emma Round - Emma took part in the discussion about welfare, social media and the economy on the show. Read her blog and follow her observations and pragmatic positive campaigning efforts.

What is Sledge Hockey - Listen to the show to hear GB's goalie Rob Gaze explain it with love for the sport in his heart ... or click to read this explanation on Wikipedia.

Winter Paralympics: Estonia win keeps GB on course for Sochi - Good news for the GB team via the BBC Disability Sport site.

Northern Ireland skier Kelly Gallagher GB's best hope for Winter Paralympic gold (BBC) - Kelly is our only gold medal hope at the Winter Para Games, the pundits say ... and you can hear her on the show.

Paralympics GB - Read the latest winter and summer Paralympic updates for Great Britain and find out more about disability sport and the people involved.

• The Ouch! talk show is a BBC News programme made exclusively for the internet and produced monthly by a team of disabled journalists and presenters.

Go to the downloads page where you can grab single shows or subscribe as a podcast via iTunes and other podcast apps. Play it on your computer, phone or other devices.

Read a transcript of the show


Publ.Date : Thu, 04 Apr 2013 12:15:40 +0000

Katherine Kowalski: Life with Lawrence, whose syndrome has no name

No-one knows why two-year-old Lawrence lives with multiple disabilities.

To mark the inaugural Undiagnosed Children's Awareness Day on 13 April, mum Katherine Kowalski writes about her son's SWAN (syndrome without a name).

For most parents, life with a two-year-old involves hours of chasing a small person around, kicking balls, building towers, man-handling temper tantrums, breezily ignoring food fads and running the gauntlet of potty training. But even if you don't love your toddler's terrible twos, you can rest easy, pretty sure that they are on their way to becoming an independent little being.

Life with Lawrence is different. We don't know whether he will ever learn to crawl or feed himself, let alone walk, talk or live independently. We don't even know whether he will see adulthood. And we don't know why.

Lawrence was born healthy but is now what doctors call "complex". It became clear early on that he wasn't developing at the same rate as his peers and before we knew it we were on a roller coaster of investigative medical assessments and tests to find a cause.

His brain, heart and kidneys have been scanned. He's endured chest x-rays, chromosome testing, repeated and inconclusive eye and hearing tests and invasive surgery. And he's also spent time in the High Dependency Unit for seizures that caused him to stop breathing.

But despite the medical profession's best efforts, Lawrence's genetic syndrome remains nameless, categorised only by a very long (and expanding) list of symptoms.

Without a label for his disability, it is impossible to know what Lawrence's future holds. This uncertainty is frightening but it has also taught us to make hay while the sun shines.


Lawrence on the beach in Cornwall


Instead of dreaming of retiring to Cornwall, we recently upped sticks and moved there to a house by the sea. Lawrence likes to copy the sound of the seagulls and on sunny days, he enjoys nothing more than a good splash about in a rock pool.

His presence in our lives has brought those little family moments that can so easily go unnoticed into glorious technicolour. Lawrence managing to sit unaided after a year of daily practice, or his four-year-old sister Beatrice writing her name for the first time are our jump-for-joy moments.

Parenting a child with an undiagnosed syndrome can be tough. There are resources available for children with well-known disabilities like Down's syndrome or cerebral palsy, and guides for accessing services specific to them. But it is very hard to know where to fit in, when there is no well-trodden path to follow.

With no answers on the horizon, I searched online for families in the same situation. There are rather a lot of us as it happens. In fact, between 30 and 40% of children with additional needs have a SWAN - syndrome without a name.

I'm now a proud member of SWAN UK, the organisation supporting families with undiagnosed children here in Britain.

While our sons and daughters are all different, there is true strength in numbers and we celebrate the good times as well as supporting each other through the bad. Because we all understand that life is unpredictable with an undiagnosed child.

I am often asked how I manage to remain calm and positive while dealing with such huge uncertainty. The truth is that Lawrence makes it easy. His disabilities may affect every area of his development but his sense of humour button is firmly switched on. He has a divine sense of the ridiculous, he laughs when his sister is getting told off, he likes to "sing" along to 80s power ballads in the car and has a penchant for country music while being a budding percussionist himself. A curry lover and telly addict, in many ways he's growing up to be a pretty typical bloke.

In spite of his difficulties, top priority for Lawrence is getting on with the business of being a loud, messy, funny, two-year-old boy.

• Katherine Kowalski writes about life with Lawrence on her blog, Orange This Way.

You can follow Ouch! on Twitter and on Facebook.


Publ.Date : Fri, 12 Apr 2013 15:49:16 +0000


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